KD-UK is the only UK based charity for Kennedy’s Disease (KD). It’s a non-profit organisation run by volunteers and sufferers and aims to provide support for sufferers, carers, family and friends while also funding research into treatments and cures for the disease.
Kennedy’s Disease is a rare inherited neuromuscular disorder characterised by the degeneration of lower motor neurons within the spinal cord and brainstem, causing progressive weakening and wasting of the muscles, particularly in the arms and legs. The many symptoms of Kennedy’s disease generally first appear when the person is aged between 30 and 50 years old.
The partnership between Titus and KD-UK began in November 2020 and will span a minimum of 2 years.
Over this time the whole team here at Titus will be involved in a range of initiatives to provide financial and practical support to the charity. This will encompass fundraising, sponsorship of events, and promotional activities to widen awareness about the vital work KD-UK undertakes.
Through the partnership, Titus aims to help improve the public understanding of Kennedy’s Disease and contribute to funding the important work carried out through KD-UK, which includes the Kennedy’s Disease Clinic at the National Hospital for Neurology and Neurosurgery in London, and the ongoing clinical trials and research into the disease underway at University College London.
If you would like to make a donation to support the work of KD-UK, you can do so here: https://www.justgiving.com/fundraising/tituslearning
“KD-UK greatly values its partnership with Titus. Kennedy’s Disease is a pernicious disease that has a massive impact on the lives of both sufferers of the illness and their families. The partnership with Titus will unquestionably help KD-UK raise the funds that are needed to find a cure for the disease. Research indicates that a cure for the disease is a realistic goal but only with the right funding.”
-Kim Slowe, KD-UK Trustee